Call for Regional Coordinators!
The Moebius Syndrome Foundation is now accepting applications for Regional Coordinators (RCs). A Regional Coordinator is a volunteer, non-paid position. We are excited to expand the structure of the...
View ArticleInaugural Webinar Scheduled: March 2, 2017
Join the Moebius Syndrome Foundation for its inaugural Webinar presentation. We’re Talkin’ Moebius! For the first presentation, we are honored to host Dr. Rhonda Robert, P.h.D., Chief of Behavioral...
View ArticleFRAME Video on Moebius Syndrome
The Moebius Syndrome Foundation is excited to announce the premiere of the FRAME video, produced by Rick Guidotti and his non-profit organization, Positive Exposure! FRAME is a web-based educational...
View Article2017 Moebius Syndrome Foundation Educational Scholarships Awarded
The Moebius Syndrome Foundation has awarded three young people with the Post-Secondary Educational Scholarships. We are pleased to announce that those awarded with $2,000 scholarships toward their...
View ArticleTell the NIH Your Views
Living with Facial Weakness? The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be...
View ArticleDownload Your Moebius Information Card!
An adult within our community brought this fantastic suggestion forward – thank you! They wanted a simple card to carry with them that explains Moebius syndrome. It is business-card size, so it will...
View ArticleFoundation Welcomes New Board Members
The Moebius Syndrome Foundation is pleased to announce that four new members have been added to the Board of Directors: Bryn Webb, MD, New York City Dr. Webb is Board Certified in Clinical...
View ArticleRoshambo Sundraiser!
We’re teaming up with ro•sham•bo baby sunglasses to help raise money for the Moebius Syndrome Foundation! Get 10% off your order with code: Moebius and ro•sham•bo baby will give 10% of your sale back...
View ArticleMoebius Syndrome Foundation Thanks Kim Cunningham
Dear Moebius Community, Kim Cunningham, the Moebius Syndrome Foundation’s Executive Director will be resigning from the role as of June 2018. For the past three years with the Moebius Syndrome...
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